About

I am running the London Marathon 2015 and I would like your support to raise as much money as possible for PMG Polymicrogyria Family Support. My friends Kerry and Richard have a wonderful little boy called Harry who celebrated his 1st Birthday in November 2014. Kerry had a difficult birth and after Harry was born they were told the news that he has the condition Polymicrogyria. More recently Harry has been diagnosed with a life-limiting condition called Pulmonary Vein Stenosis. I know you are probably asking what is this condition ? Polymicrogyria is a rare brain malformation. The word Polymicrogyria (PMG) can be broken down into 3 parts - Poly - many Micro - very small Gyria - folds in the brain So put simply it means, 'Too many very small folds in the brain'. Common problems associated with Polymicrogyria are; difficulties with swallowing meaning some sufferers have to be tube or peg fed. Many have problems with gross motor skills meaning they are unable to sit, stand or walk unaided. Some have problems with their vision and hearing, and in some cases breathing and maintaining their body temperature. Kerry, Richard, Harry and the whole family have had to deal with so much in the last 12 months. They are a great family and I wanted to do something to help them. Please dig deep, your help and support will be gratefully received. www.polymicrogyria.co.uk With thanks Wayne (Ady) Woodhall