101

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$1,207

raised of $1,200 target from 74 people

Emily, Jordan & Paul is raising $1,200 for Rett UK
About
In November 2014, our beautiful niece Nell was diagnosed with Rett Syndrome, a rare neurological disorder that affects 1 in every 10,000 girls. Unfortunately, Rett Syndrome has no cure, although scientists are working hard to find a solution to make Rett Syndrome the first neurological disorder to be treatable. In order to raise awareness, Nell's Auntie Emily, Uncle Jordan and our good friend Paul will be taking part in a tandem skydive on Saturday 22 August 2015 in order to raise money for Rett UK to help them with their search for a cure and to help other girls and their families around the UK who have to deal with this disease. Our goal is to raise 1,000 pounds. If we were able to raise any more than this it would be an amazing achievement but it would also benefit so many girls and their families around the UK by giving them the help and support that they so desperately need.

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Imagine being told your toddler you thought was healthy, but perhaps slow to progress, in fact had a rare and devastating disability that...

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