Thank you for visiting our Givey page and helping us to raise money
Story
The charity is set up and run by parents of children with this condition and an adult sufferer of the condition. Our aims as a charity are to increase awareness of the condition and fundraise to support further research, provide information and support to hypothalamic hamartoma patients, caregivers, and healthcare providers and to promote research toward early detection, improved treatments, living with HH, and a cure.
Fundraisers
435%
of
£500
£2,175
Raised
Great Eastern Run...
In 2015, not long after my sons 1st birthday. We were given the life changing news that our precious little boy has a brain tumour. It is a benign ...
2%
of
£1,000
£20
Raised
Leanne Hill
In 2015, not long after my sons 1st birthday. We were given the life changing news that our precious little boy has a brain tumour. It is a benign ...
691%
of
£200
£1,382
Raised
Book auction
My son has a hypothalamic hamartoma which is currently causing gelastic seizures. I would like to raise money to help Hope for HH UK raise awarene...
18%
of
£500
£90
Raised
Sue Jackson
My daughter Faith has a hh and suffers daily with seizures, emotional rages and more recently Adrenal Insufficiency. My sister Dee and I are planni...
0%
of
£500
£0
Raised
120%
of
£500
£600
Raised
Hair cut for HH
"Hypothalamic Hamartoma (HH) is a benign tumor-like malformation that causes a syndrome characterized by: 1) treatment-resistant epilepsy, beginnin...
Donations
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over 7 years -
over 7 years -
Andy jones
over 7 years -
over 7 years -
over 7 years -
Ian Huddlestone
Good luck mate you will enjoy it. Huddy
over 7 years
