About

He is 10 years old and has a serious illness. Sturge-Weber syndrome is a severe disability group. Constant epileptic seizures, the appearance of neoplasms on the hemangioma above the eyebrow, frequent vomiting, problems with the urinary system, and much more can be listed about the diseases and diagnoses of Nestor. There were examinations in Okhmatdet, in the IPAG, and in many more hospitals. In March of this year, Nestor was at a consultation with Antonio Russi, an epileptologist from Spain, he adjusted the treatment, reduced the dose of drugs, and the boy’s condition improved slightly. He began to eat better, his stomach hurts less, picks up a pen and tries to draw, even began to pick flowers in the yard, bring and put on the table. Attacks of aggression decreased. The family, which consists of Nestor, his mother and older sister, is now a big task. We need to go to Barcelona, ​​to the TEKNON medical center, where Antonio Russi will be able to accurately pick up antiepileptic drugs in the process of a 24-hour video - EEG, which is not done in Ukraine. Electroencephalography monitoring will last for 4 days without stopping, after which the treatment prescribed by Nestor should save him from the terrible daily cramps. Similarly, the accompanying diagnoses will be given a fight! But the sum of 15,724 pounds + flight is unbearable for a family that is exhausted by constant wandering around hospitals, but which does not lose hope of alleviating the condition of the child! The amount of 11750 pounds has already been collected and we are forced to ask them from you! Please help to save the boy.