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Fanconi Hope is a new national charity for families affected by Fanconi Anaemia (FA) to promote wider understanding of this condition. FA is a genetic disorder that causes bone marrow failure and cancer in affected children and young adults. The work of the charity includes providing information to FA-affected families, publishing the first national FA Standards of Care' document, and holding family/clinicians' meetings. Further information can be found at www.fanconihope.org