Story

The AKU Society is a patient organisation founded in 2003 in Liverpool, UK. We support patients diagnosed with a rare genetic disease, Alkaptonuria (AKU). AKU was the first genetic disease, first described by Sir Archibald Garrod in 1902. Over 100 years later there is still no cure and patients receive little help to cope with its effects. The AKU Society aims to change this by promoting awareness of AKU and funding research to understand and treat the disease.