Graham and Viccy are taking part in a 10k Mud Run with obstacles to raise funds for Polymicrogyria (PMG) Family Support. As a family, we feel very lucky to be supported by this small but amazing charity. We are part of a network of PMG families whose support, advice and experience makes life that little bit easier for those facing the unknown.
There are several types of PMG, all manifesting themselves very differently in each patient. Our son Joseph was born with Bilateral Persylvian Polymicrogyria and Worster Drought Syndrome. The cause is as yet unknown, and there is no cure. He struggles with many day-to-day activities such as eating, drinking and walking, and is non-verbal. He has however, never shown any sign of giving up. He will attempt difficult and sometimes impossible tasks several times on a daily basis...So what better way of showing our little stars how proud we are, than putting ourselves through some challenges of our own?!
Please give generously to this wonderful charity. This is not the kind of organisation who can fund equipment, holidays, or treatments, but they do organise fabulous meet-ups, they send greetings to children who are undergoing extensive brain surgery or suffering uncontrollable seizures, and they provide a safe 'place' for scared and worried parents to share their worries or concerns. Thank goodness we found them. Please help us to keep helping eachother xxxx